I’ve noticed a trend in the news lately. It’s a series of “feel good” articles about
autism. You’ve seen them – autistic kids
get voted prom king and queen, autistic athlete does good, etc. The latest one posted by a friend features
the story of a small boy in love with garbage trucks that’s become friendly with
his local sanitation guy. Said
sanitation guy recently brought him his own toy garbage truck to play
with. Mom happened to be outside taking
video that day, and posted it for her friends and family. Instead, it went viral, and everyone is
having the warm fuzzies over it. Inevitably,
being the mom of an autistic child, most of these stories make their way into
my Facebook news feed. Several of them
get posted directly to my page.
Now, I’m a warm and fuzzy kind of gal. I can “aww”, smile, cry, and get sappy over
feel good news with the best of them.
These articles do not give me the warm fuzzies. In fact, they kind of make me want to throw
up a little.
For those of you now asking, “Who pissed in her coffee this
morning?” the answer is no one. And
everyone.
Here’s my fundamental problem with these stories: They’re supposed to be shining examples of
autism awareness at their finest.
Inclusion done well. For me, they
leave a bad taste in my mouth. Awareness
done right leads to support and true inclusion.
True inclusion is an environment where autistic people are valued for
themselves – where there’s a recognition that they bring as much to the table
as their NT peers. It’s not “peer
mentorship”, or being buddied up with someone who sees it as their feel good
project and a line about how great they are for working with “those kids” on
their college resume. It makes for a really
sweet story when a young woman decides that the autistic kid shouldn’t be left
out of the prom and offers herself up as his date. But what happens afterward? What are you going to say when he calls your
house? Asks you for a date? Thinks that you’re his friend and wants to
hang out with you and your buddies?
The video of the little boy being given the garbage truck is
undeniably sweet. But what are we saying
about the worth of autistic people when something like this goes viral? In a way, what we’re saying is that we’re all
warm and fuzzy because he was noticed.
And I find it terribly, terribly sad that the act of noticing an
autistic child – an autistic person of any age - is still news.
So go ahead and be amazed at the Jason McElwains of the
world – their abilities are, indeed, amazing.
I also ask, though, that you think about that story critically. Would his feat on the basketball court have
been seen as so amazing if he hadn’t
been identified as autistic? Isn’t the
real story a question of why he was only allowed to play in those few minutes
of that single game all year long?
Shouldn’t we be asking why his coach hadn’t been spending all year
discovering and developing his talent, instead of praising him for allowing
those handful of minutes, only after he was sure that his team was already
assured the win?
Autistic people of all ages, and all abilities, should be
noticed. They should be included. For themselves – for who they are, as
amazing, autistic people, worthy of being known in their own right. That’s the non-story that I want to see. That’s when I’ll get the warm fuzzies.
No comments:
Post a Comment